﻿Patterson, Aimee. “A New Final Enemy: Reflections on Dying, 
Suffering and Autonomy.” Paper presented at the Wesley 
Ministry Conference and Symposium, Tyndale University 
College & Seminary, Toronto, Ontario, April 25, 2017. 
(MPEG-3, 24:10 min.)

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The last enemy to be destroyed is death.

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We read this in one Corinthians 1526, and
Christians have traditionally held to a

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theology that frames
death as the last enemy.

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It can be taken as a personal statement,

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as a psalmist says, who can
live and never see death.

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That statement, though,
is also escatological.

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Jesus died eternal life
to bring and lives that death may die.

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Now, we know this is not the dominant
view in Western culture today.

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A significant shift in values is taking
place in Canada and other Western nations,

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and it's a shift that is downgrading
death from final enemy to enemy.

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More and more, it appears that people do

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not fear death as much as
they fear dying and decline.

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And many people claim they would rather
die than suffer a loss of autonomy.

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In my reflections, I'm going to illustrate

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this value shift by referring to the new
federal legislation around medical

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assistance in dying, sometimes called
made, which is just an awful acronym.

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This is Canada's version of
Euthanasia and assisted suicide.

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I'll argue that requests form Made are
grounded in what I perceive to be a

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growing attitude of fear,
of losing autonomy.

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I will suggest finally

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what a Christian response to this culture
shift looks like or might look like.

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Since June 2016, federal law in Canada has

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permitted eligible individuals to request
and receive medical assistance in dying.

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That is, the provision or administration

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of medication that intentionally
brings about a patient's death.

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So who is eligible to receive Made?

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The legislation frames it this way
a person must be 18 years or older.

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They must be deemed mentally competent and

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capable of making decisions about
their request.

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And they must be competent at the time
that maid is offered to them.

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At the time of their death,
they must have a grievous medical

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condition, which may include
illness, disease or disability.

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And they must be in an advanced
state of irreversible decline.

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They must also be at a point where natural

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death death apart from maid is, quote
unquote, reasonably foreseeable, taking

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into account all of their
medical circumstances.

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And finally, they must be suffering
intolerably, whether from illness,

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disease, disability
or from their state of decline.

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And while their medical condition must be
physical, their suffering can be the

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result of a physical illness
or a psychological condition.

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This requirement of intolerable suffering

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is fundamental to the
legislation around Made.

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So what counts as intolerable suffering?

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Our minds might turn to the suffering
caused by pain and discomfort.

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Now, the legislation in Canada doesn't

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define suffering for us, but the data
coming out of places where hastening death

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has been practiced much longer than it has
in Canada provide us with some insight

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into what people claim
they are suffering from.

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Washington and Oregon are two states where

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physician assisted suicide is legal, and
each of them issues annual reports based

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on physician documentation of patients
whose requests for Pad or Pas are granted.

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The latest available reports they've

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issued identify the top concerns behind
patient requests, and I suspect that these

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results are not far off from the
concerns Canadians might have.

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So you see here, listed at the very top,

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loss of autonomy or the
fear of losing autonomy.

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And very close in the figures reported,

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less able to engage in activities
making life enjoyable.

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Following that
quite a bit further down in terms of

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concern, is loss of dignity also burden
on family, friends, and caregivers?

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Fear of losing control of bodily

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functions, inadequate pain control, or
concern about inadequate pain control?

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And finally, way down the list,
financial implications of treatment.

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And I also found it noteworthy, as I was

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looking through these reports, that in the
case of Oregon, the concern about being a

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burden to one's family
was statistically lower than the loss of

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control of bodily functions
in reports prior to 2016.

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So that shift happened in 2016, where the

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loss of control of bodily functions took
a lower place along the list of concerns.

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What strikes me is that concern about

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losing autonomy is listed in both reports,
both reports issued from both states.

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At the top, it's numerically
even with the second concern.

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Yet both states list at first, and the
remaining concerns, in my mind at least,

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go hand in hand with this
fear of losing autonomy.

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The attribute of autonomy or self
determination is considered central, I

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think, in our culture to
what it means to be human.

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And so the rights and choices of the
individual are to be respected by others.

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We think it's important for everyone to

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have the freedom to shape their
lives in a manner of their choosing.

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We're taught and encouraged to do things

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well, to do our best, to
make a success of our lives.

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Now, I don't want to demonize autonomy

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because many of us would conclude that the
good life looks like a life that is one

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that helps others, one
that is not self centered.

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But we do, I think, still struggle against
a tendency to pity those who are perhaps

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more compliant, more deferential, or
those who appear to be failing at life.

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Autonomy doesn't prevent commitment and

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loyalty to people who are deemed pitiable,
but it does seem to create a certain

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social distance between them and
those among us who are more capable.

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With all that said, uncompromised autonomy

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is simply not a condition
that is true to our nature.

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No one of us is capable of maintaining
a state of permanent autonomy.

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Human beings are by nature vulnerable.

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When our bodies and minds are affected by
illness, disease, disability, or a state

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of decline, we lose our ability to
contribute to society in the way we are

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accustomed to or in the
way we might have before.

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And it can be difficult at that juncture
to be able to find meaning in life.

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And this, I believe, is in large part due

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to the way our culture
interprets meaning in life.

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Our culture of autonomy.

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Consider the example of Kay Carter.

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Is anyone familiar with Kay Carter?
One person?

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Okay, so Kay Carter was an elderly woman
living in a care facility in Vancouver.

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She suffered from spinal stenosis, which

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is a terminal condition that involves the
progressive deterioration of the nerves.

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It left her bedridden incontinent,
unable to eat independently.

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One of her daughters is quoted as saying
she didn't want to sit in the care home

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like many others around her with her
tongue hanging out of her mouth.

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In 2010, Carter, who was 89 years old,
traveled to Switzerland to receive

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assisted suicide through an
organization called Dignitas.

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Carter's daughter and son in law were
among the plaintiffs in the Supreme Court

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case that led to the new legislation
that has made a legitimate medical act.

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The felt indignity in situations like Kay
Carter's is compounded by our social

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infrastructure, which is not adequate to
support people like Kay who are suffering.

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We don't operate out of a culture that

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presumes patients in decline will live
with relatives or those closest to them.

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We're not set up for that anymore.

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And while work is being done to improve
possibilities for good quality of life in

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long term care facilities and hospices,
most of us would still prefer to spend our

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last days among those we love in our
home in an environment familiar to us.

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And yet most of our loved ones are unable
to offer frequent, lengthy visits, perhaps

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due to distance, perhaps due to the
sheer busyness of work and family life.

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I feel deep compassion for people like Kay
Carter, people who seek to avoid suffering

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a loss of autonomy by choosing
to hasten their death.

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Nobody wants to be in the situation
that Kay Carter was facing.

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Yet I come from a faith tradition that
holds to the theological conviction that

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God has created each of us with a value
that exists apart from any capacity.

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We have to be autonomous.

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Christians are called to be a witness to

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this truth, while never forsaking those
who suffer intolerably

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so what does this witness look like
in the midst of this cultural shift?

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What is it to be a witness of indelible

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human dignity in a culture that values
autonomy in such an extreme way?

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I think there's something to be
said for learning to suffer well.

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As how Ross has it, suffering is something

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that is unavoidable in
human life, after all.

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So Christians are called to
suffer with grace and patience.

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But I've never been in a class or Sunday

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school class or a Bible study where
I've been taught how to suffer well.

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And I don't think many of us
are taught how to decline.

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So I also think there's something to be
said for learning to care well,

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learning to care well for those who
are suffering a loss of autonomy.

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And I'd like to illustrate this by

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providing two examples, one from
the past and one from the present.

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So I have a favorite example of Christian

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compassion, and it happened very
early on in Christian history.

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Came to my attention while
reading a book by Rodney Stark.

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He's a prolific sociologist of religion.

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He's got a dubious reputation, but Stark,
I think, is a very entertaining read.

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He chronicles two epidemics that
swept through the Roman Empire.

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First, the Antonine Plague in 165.

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Ce Or Ad.

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And the plague of Cyprian, which
occurred nearly a century later.

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Both these plagues are thought to have
wiped out about a third of the population.

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The best Greco Roman medical science of

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the day failed to provide a
remedy or to prevent contagion.

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People stopped visiting one another.

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Family members who showed signs of illness

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were tossed out into the
streets to suffer and die.

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Communities and cities collapsed, and

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survivors found that their
society had been totally upended.

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But the Christian community on the
margins of that society looked different.

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Christians were bound together by an ethic
of compassion,

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and not the kind of compassion that's
characterized by pity, but the kind of

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compassion that's expressed in its
literal meaning to suffer with.

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Christians risked and often lost their
lives caring for each other in very simple

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ways providing food, water, shelter,
company, a safe place to sleep.

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And their shared suffering strengthened

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them in their belief that death would die
and that soon there would be no more pain,

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no more suffering, no more
tears, no more mourning.

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And this, they believed, was
a truth worth suffering for.

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Stark goes on to speculate that this
contributed to a higher rate of survival

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among the Christian population as
compared to the pagan population.

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And he also notes that when Christians
extended compassion to the pagans who had

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been just tossed out by their own
families, the result was not only healing

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for them, but mass
conversion to Christianity.

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Now to a more contemporary expression of

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compassionate care in the
face of the loss of autonomy.

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And I hope

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you will be gracious in allowing
me to share some of my own story.

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I speak as a person of faith who has long

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believed that human beings have
been created in the image of God.

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I speak as a student of ethics whose
doctoral dissertation addressed end of

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life care issues and was grounded in an
assertion of inherent human dignity.

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I also speak as a person suffering a
serious, incurable health condition.

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I was about three weeks into my job
at the Salvation Army Ethics Center.

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I was still nursing my second child when I
had what is explained as a focal seizure.

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Within weeks, I was diagnosed with brain

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cancer, and I began a 15 month course of
very taxing treatment that included

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surgery, radiation
therapy, and chemotherapy.

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Throughout this, I had a number of
distressing experiences of pain and

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discomfort, and honestly, some of these
made me wish

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I would rather have died than to have
had to experience them over again.

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And yet the deepest sources
of my suffering were.

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The limitations that I found were put
upon my public life and my personal life.

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Everything I had achieved, all the work I

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had put into my life at that
point was turned upside down.

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I feared never returning to work.

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I feared leaving my husband a widower,

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and most of all, I feared abandoning
the children I had given birth to.

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All of these fears were wrapped up in the

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decisions I had made in order to live
what I conceived of as a good life.

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They hadn't been bad decisions
or unreasonable decisions.

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They were decisions, though, that would

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have profound ramifications
on the lives of others.

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My darkest hours of suffering were
isolating, both physically and

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spiritually,
and it became easy for me to question

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whether God felt any compassion for me
or whether God would express that

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compassion in a way
that I could recognize.

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And in some of these darkest hours, I

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would turn to Scripture for
hope of enlightenment.

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There were many Scriptures I looked at,

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but the story of Job is certainly the
obvious choice for those of us who suffer.

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And I read Job's Lament
here in chapter six.

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This is taken from the Niv
version, coming from 1987.

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What strength do I have
that I should still hope?

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What prospects that I should be patient?

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Do I have strength of stone?

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Is my flesh bronze?

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Do I have any power to help myself now
that success has been driven from me?

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A despairing man should have the devotion

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of his friends, even though he
forsakes the fear of the Almighty.

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Job characterized his own
friends as undependable.

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So did Jesus.

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But as I read this portion of Scripture,

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this lament, I realized I
couldn't make this complaint.

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In fact, I believe it was the
compassionate care of others that

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convinced me that God
had not abandoned me.

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So what did this care look like?

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It looked like friends and family who
worked together to make and deliver meals

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five nights a week to my household
for over 13 months.

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It looked like babysitters and daycare

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providers who volunteered to take care
of my children so that I could rest.

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It looked like colleagues who provided

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opportunities for me to work
on small projects at work.

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It looked like neighbors who drove
me to my medical appointments.

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It looked like global neighbors who
kept in touch by snail mail and email.

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And it looked like people
who prayed without ceasing.

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I couldn't help but see the truth
that if imperfect human beings could be so

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loving and so compassionate,
that must mean that a perfect God

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loved me as well and felt
compassion in my situation.

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I still do experience treatment side

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effects that are reminders
of my mortality.

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I have painful neuropathy in my calves and
feet and toes, and this haunts me almost

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every night, reminding
me that it's not over.

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And yet I remain convinced because of this

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witness, that as I suffer,
God suffers with me.

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What I hope has come across in these

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examples is that suffering
in itself is not good.

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Still, suffering is an unavoidable part of

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life, and its source is
deeper than human flesh.

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It cuts to the very heart of a person.

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The Christian witness is that healing is
more than relief from a loss of autonomy,

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though it's a transformation
of the whole person.

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However valuable autonomy might be,
it's not at the heart of our being.

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Closer to the heart of our being is our

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capacity to respond compassionately
to those who suffer.

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And when someone else is suffering

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unavoidably, then suffering
with that person can be good.

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Compassion, as the early Christians
show us, does not require expertise.

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It's often expressed in humble ways.

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And yet its effects can be enormous.

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When a person recognizes the dignity of

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someone who suffers a loss of autonomy and
treats that person as someone of value,

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they show that suffering does not
wipe out that person's meaning.

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Now, I can't say that I can predict
the outcome of such a witness.

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Would it, for instance, reverse the
legislation that surrounds Made?

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I don't know that I could say yes, and I'm

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not even sure that's really where we're
going with an ethic of compassionate care.

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I think, rather, the aspiration would be

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to shift our culture to such a point that
no one would ever even want to receive

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Made because people were
suffering with them.

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It's a lofty goal, but whatever the
outcome, I am convinced that we are called

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to suffer with those who suffer, to
reassure them of their inherent value,

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and to witness to the truth that
Christ lives, that death may die.

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Thank you very much.

